What Should You Do About Your Diabetes?
The goal of this page is to show you resources that have helped me get my diabetes under
control. Information is power with diabetes because diabetes is one disease you can
really control with your own actions. You aren't a victim of diabetes. You can do
something about it. But you have to know what to do. And as you have probably found
out, there are a lot of different opinions on what to do.
So, what should you do?
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Read information at the American Diabetes Association (ADA) at
http://www.diabetes.org/home.jsp. The ADA is a good starting point. There
are other approaches to managing diabetes than what I cover here. I advocate a low
or moderate carb approach, the ADA takes a different approach and you should consider
that approach as well.
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Read the information sources in section Good Diabetes Web Sites.
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Then come back and read the rest of my page.
In short, the plan I follow is:
- Eat to my meter. Follow an appropriately carbed diet.
Eat slowly digesting carbs. Spread my carb intake during the day over several small meals.
- Exercise every day.
- Lose fat, especially abdominal fat through proper diet (few processed foods, lots
of veggies, lean meat) and exercise (mainly walking).
- Gain muscle by lifting weights and exercising.
- Take an anti-Insulin Resistance med like metformin.
- Read diabetes related news groups everyday. This
keeps me caught up with any new developments, I continually learn, and
I am continually mindful of treating my diabetes.
Why Do People Think I Hate the ADA?
I don't hate the ADA. Not at all. So put your email client down. But I get
hassled a lot for not thinking the ADA is the best source of all diabetic thinking in the
entire world. I think they are a great source of information. I also think the ADA's
policies for treating diabetics aren't good enough.
You might be asking: who are you dimbulb to be arguing with the ADA? Good point.
But don't classify me as a whack-job just yet.
In my opinion, you'll learn more practical information for handling
your diabetes from the resources I link to than from the ADA.
Here is a quote from the ADA that lies at the heart of my problem with the ADA. The quote
is taken fom the introduction of a document titled Evidence-Based Nutrition Principles
and Recommendations for the Treatment and Prevention of Diabetes and Related Complications
(http://diabeticdiet.notlong.com/):
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Before 1994, the American Diabetes Association’s (ADA’s) nutrition principles and
recommendations attempted to define an "ideal" nutrition prescription that would
apply to everyone with diabetes. Although individualization was a major
principle of all recommendations, it was usually done within defined limits for
recommended energy intake and macronutrient composition. The 1994 nutrition recommendations
shifted this focus to one that emphasized effects of nutrition therapy on metabolic control.
The nutrition prescription is determined considering treatment goals and lifestyle
changes the diabetic patient is willing and able to make, rather than predetermined
energy levels and percentages of carbohydrate, protein, and fat. The goal of
nutrition intervention is to assist and facilitate individual lifestyle and behavior
changes that will lead to improved metabolic control. This focus continues with
the 2002 nutrition principles and recommendations.
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The sentence in bold may seem innocent enough and on the surface it seems perfectly
reasonable. What it means, however, is the ADA tries gives advice they think you
will accept rather than advice that puts you in the best position to treat your diabetes.
I think you can and should do better for yourself. I think you should have the
highest standards and be the best you can be (roll the Army recruitment commerical).
For example, people like high carb foods (cake, donuts, ice cream, etc). In my opinion,
the ADA thinks if they tell people not to eat high carb foods then people will just give
up and eat them anyway, which will only worsen their health. The ADA recommends a diet
of 50% carbs which works out to about 330 grams of carbs for a 2400 calorie a day diet.
That leaves a lot
of room for controlling diabetes through diet. Yet, most people aren't asked
to lower their carb intake, they are just given more meds.
So the ADA compromises and encourages what many people think is too high a carb consumption.
And the ADA is probably right. Most people won't make the changes in their life that will
help them the most.
But that's not you. You want to know what will help you the most, even if that might
be a little harder than doing anything you want. You are prepared to make the changes
in your life that will keep healthy and happy for a long time to come. Good. I'm glad
you are the kind of person that found my page. Those other people are going to eat themselves
into an early grave. But not you, thankfully.
The conclusions from two studies point to inhereted IR as the
primary cause for T2:
Insulin is made by your pancrease in response to the food you eat to tell
your cells to let sugar in. Sugar is a source of fuel for your cells.
Being insulin resistant means your cells aren't listening to the insulin signal
so your cells don't take in the sugar from your blood stream. This leaves the
sugar in your blood which is one reason why T2 diabetics have high blood sugar.
This is also why people with diabetes may feel tired, their cells aren't getting
a source of energy they need.
Too much insulin is produced because of the insulin resistance. Your body
makes more insulin in an attempt to force your cells take up the blood sugar.
Insulin causes you to gain weight because insulin also helps control how much fat
is stored in your body.
More fat worsens IR. IR is strongly associated with fat inside your abdominal wall.
This fat is called: belly fat, abdominal fat, visceral fat, and omental fat.
This isn't the fat you see when you pinch an inch. In fact, you can't see this
fat at all. You can't measure it directly either. You can see it with body
scan though. I saw mine in a body scan and that was some of the motivation
I needed to start losing weight, even before I was diagnosed with diabetes.
You end up with diabetes when your beta cells, the cells that produce insulin
in your pancrease, start failing and they can no longer keep up with the amount
of glucose in your blood. You may still have higher than normal amounts of insulin,
but because of the IR it doesn't do any good. Much of the damage to your body has
probably already occurred before you can see high blood sugar readings. Some people
think high blood glucose readings show up when about half your beta cells are
non-functional.
So it's a viscious circle. More fat leads to IR which leads to more insulin which
leads to more fat which leads to more IR and more beta cell death.
Where does the circle begin? I haven't seen a definitive answer. My guess is like
most everything else, a weakness in one part of the system can
quickly make the entire system fail. If you gain weight then that might
start the IR that starts the process. In another person the IR starts
the process. Or it can be a little of each feeding of each other.
I look forward to more research so we can learn more.
In addition to causing weight gain, excess insulin production is also thought
to cause a wide range of medical problems, but without insulin your blood
sugar is definitely high and high blood sugar causes death through the terrible
damage it causes to your body. So you always need enough insulin to control
blood sugar.
If you want to reduce insulin, say to lose weight, then you have two
safe approaches:
Weight loss and exercise may not be enough to fight insulin resistance. T2 is
a complex disease. Weight gain is often just a symptom of IR. You may need
to drugs to truly take the fight to your IR.
Diabetics Should Eat to Their Meter
You are fortunate as a diabetic because you have two tests to
show how you are doing:
- Blood glucose meter. The meter shows you how you are doing
during the day and how you specifically respond to foods.
- A1C test. The A1C test shows you how you are doing over a period
of time.
Get a meter and test strips from your doctor. Using the blood glucose meter
tells you if your blood sugar is too high. You don't have to guess.
You never have to guess. You can always tell how food is effecting you simply
by eating and then testing your reaction to what you have eaten.
Once you start eating to your meter you'll notice you need to eliminate
many high carb foods from your diet. You'll notice that veggies are good
for your health and good for your meter. You'll notice you'll start losing
weight. You'll notice eatin too much of any food will cause high
blood sugar numbers. And you'll notice your blood work will show improved
numbers. Your doctor may do a happy dance over your blood work.
Using your meter is easy. You just poke yourself with your needle, get a little
drop of blood, and put it on the test strip that is connected to your meter. The meter will
then tell you your blood sugar level. Around 80, but no lower, is an ideal "normal"
number. You probably won't see that range very often. Anything above 140 could be damaging
your body. You may think poking yourself to get a drop of blood hurts, but it doesn't
really. You soon get used to it. Many people find they can poke the same area all the time
without doing damage. Poke on the outsides of your finger, near the tip. Some people
don't like poking their finger tip because then their finger hurts when they hit
the tip. I don't find it hurts on the tip. As always, your mileage may vary (YMMV), so figure
out what works for you.
Everyone is different. Some people can eat, without raising their blood sugar, a lot a food
you can't touch. So your best bet is to try foods and test one hour after eating the
food and then two hours after eating the food. You want your blood sugar at 140 or under. If
it's over 140 then you ate too much. You can eat anything you want. There is no food
you can't have. You just can't have too much.
You can have has much of a food as you are willing to have your blood sugar rise. Carbs
directly raise your blood sugar levels. You can choose to eat a high carb food, like
a potato, as long as you eat a portion that will keep your numbers within your target
range. You find out how much of a food you can eat by testing.
For example, I can barely have any rice. Even small amounts of brown rice make my blood
sugar skyrocket. Yet I can have a good amount of apple and oranges. I can have a couple
tablespoons of ice cream as well without having any problems.
The way you figure all this out is to test. Don't rely on what anyone says. Don't
rely on packaging. Test what your body does when you eat certain foods. Pretty
soon you'll learn how your body reacts and you'll know what you can eat and
how much you can eat.
Calories still count, so you can't only eat to your meter. With a meter only strategy
you may find you can eat too much. It's not too hard to have good numbers yet eat
way too many calories. Just keep your weight and calorie count in mind.
Studies show "normal" people spike at 30 minutes after eating carbohydrates. After
1 hour they are back under 120 mg/dl. They are often under 100. As a diabetic you
probably won't see these numbers unless you eat low carb and smaller portions.
Some studies show your .5 hour readings don't correlate to heart disease and other problems
whereas people who spiked at 1 hour were correlated with problems. So if you can only
test once you might want to test at 1.5 hours after eating carbs. You'll miss your peak reading, but
you'll be able to tell if your readings are heading down, which is what you
want.
Using Your A1C Test to Control Diabetes
As a diabetic you have the A1C test to help you figure out how you are doing.
The A1C test is usually performed by your hospital because it requires drawing
blood and sending the test to a lab for processing.
You'll probabably be asked
to take the test every 3 months. If you aren't asked to take the tests several
times a year you may want to force the issue. Your A1C is an important marker
of how you are doing. Without knowing your A1C you lose valuable input into
tracking your progress and making necessary changes.
A lower A1C means your blood sugar has been generally lower than if you had a
higher A1C. And a lower A1C is better because it means you have a much lower risk of
diabetes related complications.
A good target A1C is in the 5 range. Lower is better. Being in the 5 range is called
being in the 5 percent club. This is a club you want to be in. Research has shown being
in the five range means you'll have less of a chance of complications. Anything over 6 means
you are at a higher risk for a heart attack and other complications. There are no guarantees of course.
Complications may still happen even if you are in the 5 percent club. But I play the
odds and the odds are better if you are in the 5 percent club.
Recommendations differ widely on what's
an OK A1C. You'll be tempted to accept a higher A1C because it means you'll be
able to eat a more "normal" diet, but that's not healthy. Death rates are directly
tied to your A1C level so you want to keep it as low as you can.
If your A1C is high it means you need to tighten your control by exercising more
and being more careful about your diet. If you do those two things your
number will magically go down. It's fun to track your progress that way. You'll
notice that if you say screw it and loosen your control your numbers will go back
up too.
Your A1C is a longer term check on how you are doing. You still need to test using
your meter and make adjustments according to your meter.
Some people don't use A1C in controlling their diabetes. I believe strongly in getting
the most information you can and using it. The A1C is a good measure to have.
A1C is used in many studies so if you don't track it you are losing valuable
insight into your health.
For example, one study found a 1% increase in A1C was associated with a 28% increased
risk of death, which was independent of age, blood pressure, cholesterol, body mass
index and smoking. So your A1C is an important test.
For a good explanation if A1C take a look at the diabetes FAQ at
http://www.faqs.org/faqs/diabetes/faq/part2/.
Home A1C Tests
You can buy home A1C tests, relatively cheaply, online or at pharmacy.
Many people have found the home kits are reliable because they match
the results from their lab tests. You do not require a
prescription to get a home test.
Apply the Test Results to Continually Help Make Yourself Better
Just testing won't do you any good unless you use the information to adjust
your behaviour. Knowledge must be translated into practice. Diabetes is a disease
you can actively control. It's not just about taking meds and letting
the disease run its course.
Many people will test but not use the results to adjust their behaviour. The
test results always tell you something, you just need to learn to read them.
If your numbers are rising and you think your control has been good, then it
might be that you are getting a cold. Your blood sugar rises in response to
sickness and stress. When I see that I immediately rest more which hopefully
helps me get better faster.
You'll here people talk about control a lot. How is your control?, someone
might ask. Control is keeping your blood glucose within your specific goal target
range. When you are out of control your numbers are too high and that's when damage
happens to your body. You stay in control through all the informaion you'll find
in this page and all the sources of information you'll read. Clearly, staying in
control is an important goal for a diabetic.
If your numbers are high then you need to find out why. Did you eat too much?
Did a food contain hidden sugars? You can't trust labels. Are you particularly
sensitive to a certain food? If you are then avoid the food or eat less of it.
Or does a food not cause you to spike (really increase your blood sugar level)?
It's always exciting to find a new food you can eat without worrying too much
about how it will impact you.
If your numbers are trending up it could mean you aren't exercising enough or
that you are gaining weight.
Every reading tells you something new. Use the information to learn and make
yourself better.
Seek out a proactive doctor who is willing to give you a prescription for at least
300 test strips while you discover and customize your diet for you.
Carefully watch food does to you and base your diet on your personal response to
food. You may not so low a carb diet to succeed.
To avoid complications from diabetes you do not need to maintain absolute, perfect
control. That isn't physically possible anyway. What you need to do is
maintain consistent control. Studies have shown that even if you make a few slip-ups
in your control you are still helping yourself enormously in the times you have
good control, so don't give up just because you are human and make a few mistakes.
When Should You Test Your Blood Sugar?
I test in the morning, after meals/foods I haven't had before, and after dinner.
If I have a meal or a snack that I've had before and have tested several times
already, I usually won't test.
Test about 15 minutes before you eat so you can how many carbs you can get away
with eating. If your numbers are low then you can eat more carbs than you could if
your numbers are high. That might mean you could have a food you weren't planning
on eating or you could have more of an old favorite.
I definitely test one hour and two hours after eating new foods or eating more of
a food than I usually do. Times start from when you take the first bite of food.
This is how I experiment and learn what I can eat and
how much I can eat. If I try a 1/4 cup of rice, for example, and my numbers spike then I'll
pretty much give up on rice for a long while. Then I'll try rice again later and
see if anything has changed.
I know I can eat about 1/2 orange without spiking. I know that because I test
eating different amounts of orange to see how I react. My standard is that I should
never go over 140. Many people think this standard is too strict, but that's my
standard.
Your readings will vary hour by hour, day by day, week by week, even for the
same foods. No two days will be the same no matter how many pills you take
or how much exercise you do. This will frustrate and anger you and sometimes
you just will want to give up. But don't. It gets better. Then it gets worse again.
Be prepared for a wild ride for a while.
Some people like to make a game of it. Your meter is like a Nintendo game machine and
your blood sugar becomes the game score. You make whatever moves will get you to your
score. If you are a competitive person this can be a useful way to see the whole process.
When you first start testing be prepared for how high your numbers can get
after what you may consider a normal meal. It can be shocking. Until you start eating
to your meter and you try to create your own low-spike diet by changing your meals,
your numbers may be all over the place. You may find you have high morning numbers,
high pre-meal numbers, and high post-meal numbers. As you test and eat to your
meter, all those numbers will come under control.
Are Carbs Evil?
Carbs are treated by a lot of people like toxic sludge. So we may want to
ask: are carbs evil?
I am not able to answer that question, as much as I would like to. As usual
I'll give you how I see it, and you can feel free to ignore everything I say.
Given how confused I personally feel about the issue, that may not be such
a bad idea.
There are two general issues as I see it:
- Are carbs bad in your diet if you are not a diabetic?
- If you are diabetic what should you think of carbs?
Humans don't seem to have a single perfect diet. People all over the world
live on all kinds of different diets. We humans are marvelously adaptive in
the foods we can eat. It doesn't seem that we can count on science to say
exactly how we should eat.
From a general diet point-of-view, the opinion on carbs seems to be all over
the map. It ranges from our ancestors didn't eat a high carb diet so neither should we
to the only healthy diet is to eat high carbs because look at how long the Japanese
(or insert your long-lived group here) live.
Most of those long-lived people eat moderately and get exercise. My guess is that
has as much to do with their good health as anything. Plus, they usually eat
fish which gives them all the good omega oils, which has got to help. Plus, they
eat plenty of veggies and the veggies may do as much good as anything else they
do.
You need vegetables and at least some fruits for vitamins and fibre, and they
contain carbs. So you will need to eat some carbs to get proper nutrition.
In my mind there's no question that refined carbs, like white flour, especially when
combined with fat, are both bad for your heart and bad for your weight. The more
weight you gain the more medical problems you have the more likely you are to
become T2.
Many of the studies saying saturated fat is bad for you don't control for carbs,
so it's hard to separate out properly the interaction between carbs and
saturated fat. In my mind at least, I am not going to eliminate
saturated fats from my diet, as long as I am eating low carb. But I have somewhat
reduced my consumption of saturated fats (steak, hamburger, etc).
If you eat unrefined carbs, from vegetables and whole grains, then it seems you'll
be healthy. Could you be healthier eating some other way? Everyone says yes, but
they don't agree on what way is better. It doesn't matter anyway for most people.
Most people drink Big Gulps worth of sugar,
eat McDonalds every day, eat candy bars, and all that high calorie low nutrition
stuff. I would say refined carbs, especially in the large portions in which
they are eaten, make for a really bad diet. A cookie every couple of days won't
hurt.
But for diabetics that's not the whole carb story. Diabetics have a
malfunctioning body when it comes to carb processing. For a diabetic
a whole cookie could hurt because eating too many carbs causes a spike,
a sharp rise, in your blood sugar. Spike can help make you diabetic. Spikes
also cause a diabetic further damageand we want to avoid that damage if we
can. And we can.
In your day-to-day life this means reducing carbs on a per meal basis so as to
minimize your chance of spiking. As a diabetic an ambitious goal is to get
all your calories and nutrition without spiking.
Eating carbs is a balancing act for the diabetic. That's why I'll say about
50,000 times on this page that your best friend is your blood glucose meter.
Using your meter you can test how you are responding to food. It's
your meter that tells you how many carbs you can eat.
There's a kind of parallel between carbs and cholesterol. Cholesterol isn't
evil though it has got a lot of bad press lately. You need cholesterol for
building your cell membranes. The difference between cholesterol and carbs
is that you don't need to eat any carbs to survive. Your required daily intake
of carbs is 0. Surprising? I thought so too. Your body will make
the carbs it needs from protein and you are required to enough protein.
So you aren't required to eat carbs, but will eating carbs make your life better?
I don't think you can realistically get all your nutritition in today's world
without eating carbs from veggies and fruits. The Eskimos did eat mostly meat,
but they ate their meat raw and they ate every part of their catch.
I don't think most people will do that today.
Carbs are also likely a necessary part of endurance exercise. Carbs have been shown
to help both performance during exercise, and promote healthy muscle recovery after
exercise. Again, carbs come into the picture.
So I am not a frothing-at-the-mouth low carber. As a diabetic you should control
your carbs to prevent spikes. Like many other T2s my choice of how to control the spikes
is by eating a low to moderate carb diet. A better way to say it is that I eat an
appropriate carb diet for my body and my life. If you are eating low carb as part
of a weight loss program then that is another kettle of fish that I won't
comment on.
I don't intend this to be a low carb advocate site. I am just telling you
the decisions I have made and why.
Why I Chose a Low Carb Diet
There is a lot of controversy on how you should eat as a diabetic. There are
two basic approaches:
- Eat relatively normally and use medication to control your blood sugar.
- Eat low carb to control your blood sugar. Low carb means different things
to different people. My personal target is between 80 and 100 grams of carbs a day.
More importantly, my target is to never go over 140 on my meter, regardless of
the number of carbs. Perhaps if I ate smaller more frequently meals I could eat
more carbs, but that approach won't work for me as I tend to eat too much when I eat
more meals.
My choice is to eat low carb. My reasoning is:
- Eating low carb gives me the greatest amount of control over my blood sugar.
This is because if I don't eat a lot of carbs then I know my blood sugar
won't spike.
- If I don't spike then I won't do further damage to my body.
- If I don't do further damage to my body then some of the damage that has been done
will reverse and I won't get worse. My neuropathy has been getting better, so I know
this approach works.
Other people will make a different decision based on their own priority list. It's
your choice of course. If my body could tolerate more carbs, believe me, I would eat more
carbs. But through my testing program I know what I can eat and not eat. If I had
more faith in medicines to keep my blood sugar under tight control I might make
that choice, but I don't think medicines will meet my stringent blood sugar control
targets. They may meet your personal targets however.
Low carb is not the same as no carb. You don't have to be on Atkins or a South
Beach diet to be on low carb diet. You just need to limit your carb intake to what
your meter shows you can eat without spiking your numbers above your blood sugar target.
In the US the the average carb intake is 350 grams or more a day. I eat at 100 or less.
So I eat low carb by definition, but that's still not no carb.
Diabetics Are All About the Vegetables
Many people think low carb is mainly about eating lots of meat. It's not. Low carb
is mainly about eating your veggies. I eat more salad and more veggies than I ever did
before my diabetes. That's because veggies are low carb. They are also very
nutritious.
I find I eat acceptably well on a low carb diet. I miss bread and donuts, but
I still eat them, just in very small quantities. I still eat fruit. I eat chocolate.
And I eat a lot of veggies. It's not as bad a way to eat as you may think. And when
you see your blood sugar and your A1C under tight control, it's a good feeling.
You won't eat a lot of processed foods on a low carb diet. I eat
veggies (broccoli, carrots, lettuce, cucumber, peppers, cauliflower, etc), lean meat
(chicken, turkey, fish, tuna), some not so lean meat (hamburger, steak), and some
fruit (strawberry, orange, apple). More veggies than meat. I also eat a lot
of cheese, salsa, nuts (almonds, cashews), sour cream, and spices. Depending
on what by numbers are I made have a little potato or kidney beans.
It's the processed foods that contain sugar and trans fats and all the bad
stuff for you. By eating low carb from natural foods you are eating better
all the way around. That's why many of the low carb food vendors are going
out of business now. You don't need specialized processed foods to eat low
carb. You visit the produce section and the meat section and you are pretty
much taken care of.
And I never go without a dessert, I just eat small portions or eat a low carb
dessert. Food is still very fun for me.
Dealing With Diabetic Neuropathy
Neuropathy happens because your nerves have been damaged/destroyed because of
reduced blood flow due to diabetes. You usually feel the pain from neuropathy in
your hands, arms, leg, and feet. You can feel anything from a pain like your
parts have fallen asleep to very sharp hurtful pains. The tingling in your
extremities may be so subtle you may not even realise it is there for a
long time.
Neuropathy is not pleasant. Not pleasant at all. And there's not much that can
be done about it.
Asprin won't help. It's not that kind of pain.
The biggest problem I had with neuropathy is that I had it for a long time
yet I didn't know I had it. I ignored or explained away all the little
pains neuropathy creates. Looking back it's hard to believe how stupid
I was. But I am not alone. A lot of people report ignoring the symptoms
of neuropathy. What stinks is that neuropathy could tell you that you have
diabetes, but you don't understand about neuropathy until you find out you
have diabetes!
What can you do about neuropathy?
Neuropathy can be reduced, even somewhat reversed. Here's my plan:
- Get your blood sugar under control. Controlling your blood sugars is the most
important thing you can do to control neuropathy. Control means getting your morning
numbers (fasting) and your post meal (post-prandial) numbers under control. Both
need to be under control, not just one or the other.
- Take Evening Primrose. I take 1300 mg at night.
- Take ALA (Alpaha Lipoic Acid). I take 300 mg evening and night.
Many people have found ALA and Evening Prim Rose effective and there are supporting
studies, so it's not pure mumbo jumbo. If you have felt the pain you will be ready
to try anything. Give these a try. But don't forget controlling your blood sugar
is the key.
For more infomation see
http://diabetes.niddk.nih.gov/dm/pubs/neuropathies/.
Neuropathy also has been associated with statin use.
Not All Pain is from Neuropathy
Keep in mind that you can have pain that isn't from your neuropathy, yet feels
like it might be from neuropathy. Often what people will do is mistakingly chalk
up any pain to their neuropathy when they could be getting better.
For example, sciatic nerve pain may feel like neuropathy, but it isn't. Keep in mind to
have any pains you have diagnosed and treated on their own. You don't want to be
that person that learns 10 years later that
they could have avoided 10 years of pain by simply having their problem
looked at.
ACE inhibitors can aslo sometimes produce symptoms similar to neuropathy.
Some people report similar symptoms when blood pressure meds push blood pressure too
low. They also report pains running down their legs and waking at night with limbs asleep.
Another possibility is carpel tunnel syndrome if you keep your hands in a
cupped position during sleep.
More Information...
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Intensive Therapy Relieves Diabetes Neuropathy
The relationship between blood sugar control and neuropathy suggests that
intensive therapy has a durable effect on neuropathy similar, similar to
what has previously been reported for diabetic eye disease and kidney
disease, the authors conclude.
What Will Happen If You Ignore Your Diabetes?
More than 18 million Americans have diabetes. We are a large (no smirking)
and unfortunately growing group.
The temptation to ingore diabetes is immense because the complications seem so
far in the future. You can have the donut now and nothing bad will happen now
or even a month from now. The bad stuff happens later. For many people having
the effect of complications so far in the future helps then pretend
to be a normal person and eat whatever they want. That's a mistake.
It doesn't hurt to snatch a peak behind the curtain and see what awaits
those who don't control their diabetes. Most real life T2s don't own a meter.
Most don't keep their blood sugar under tight control. What can they expect?
Diabetes is really a group of serious diseases caused by high blood
glucose levels that result from defects in the body's ability to
produce and/or use insulin.
Diabetes can lead to: severely debilitating or fatal
complications, such as heart disease, blindness, kidney disease,
and amputations. Yes, lots of people have their parts chopped off
or go blind. Excess blood glucose also impairs the ability of your
white blood cells to fight off infections and heal wounds.
Diabetes is the fifth leading cause of death by
disease in the U.S. T2 diabetes involves insulin resistance (IR).
IR the body's inability to properly use its own insulin. IR usually
occurs in those who are over 45 and overweight, but IR has
now become a popular disease with obese children and teens in recent years.
If you need help in taking this issue seriously, please
read the BBC News article
Diabetes raises early death risk.
They found atients with Type 2 diabetes aged 35 to 54 were three times as likely to die early as
non-sufferers of the same age.
The complications from uncontrolled diabetes can be severe. Yet you
don't have to live each day in fear. Do the best you can to control
your diabetes through food, exercise, and medication. Once you've truly
done your best then let the chips fall where they may.
You will definitely want to tell your dentist about your diabetes. Diabetes makes
a difference in your treatment. If you have been continually hassled about your
bad gums and teeth, it may be due to diabetes. Diabetics tend
to have more gum disease. That's why it is especially important for you
to brush and floss.
Diabetes and Insurance
Getting insurance with diabetes is difficult becuase diabetics typically
aren't very good at controlling their disease and diabetes leads to a lot
of expensive problems. You can not overestimate the black mark diabetes
is for insurance. You must plan ahead if you think you may have diabetes.
And if you have diabetes you must plan ahead to what will happen if you
should lose your insurance.
An excellent paper on the topic can be found at
Health Insurance Information for People with Diabetes. Another good article is
Health Insurance for Diabetics.
It's not good news.
There are several types of insurance you may need to be concerned with:
- Health Insurance
- Life Insurance
- Long Term Care and Disability Insurance
Demonstrating good control may help you with certain kinds of insurance.
If you think you may have diabetes then get your insurance taken care of before
you go in and become officially diagnosed. It is much easier and cheaper to get
insurance without diabetes.
Check your life insurance to see how much it will cost you to increase
it or get renewed with a diagnosis of diabetes.
If you think you may have diabetes and you have insurance then get it
treated while you have insurance.
If you have diabetes you may want to consider how you'll handle it
if you get fired or take another job without insurance. Without insurance
your options aren't good.
Insurance in the US is messed up. I don't really have any good advice.
My having good control over my diabetes made no difference to the insurance
companies. I am an expensive risk and they charge accordingly.
I only see the health care problem in the US getting worse. We in the US pay
more money for poorer coverage than most other developed countries. This
all seems academic if when you are well or have good coverage. When you
have a medical problem and don't have coverage then the reality of it
is very real.
Diabets are More Expensive Patients
“Annual health care costs for those with the highest pre-diabetes
blood glucose levels were 31 percent above those with normal blood
glucose levels, with many of the extra costs due to cardiovascular
disease, which is expensive to treat but far less expensive to prevent,”
said Gregory A. Nichols, PhD, Senior Research Associate, Kaiser
Permanente Center for Health Research, Portland, OR, in a recent interview.
“The application of preventive medicine techniques, through early
diagnostic testing and intervention, could lengthen lives and lower
health care costs when pre-diabetes is spotted.”
A Kaiser study by Dr. Gregory Nichols and Dr. Jonathan Brown, found:
Age and sex adjusted costs were $4,357 annually
for patients with normal blood glucose levels, $4,580 for those with
stage 1 pre-diabetes, and $4,960 among those with stage 2 pre-diabetes.
However, costs for those with normal blood glucose were only $3,799
annually when those who later progressed to IFG or diabetes are removed,
thus yielding the 31 percent difference, Dr. Nichols cited.
“The increased costs are seen in inpatient, outpatient, and pharmacy expenses,”
reported Dr. Nichols.
A small sore on a toe may not seem like a major medical threat. But for the millions
of people who have diabetes and other conditions, it can be the first step on a
road that leads to the amputation of a foot - or even a leg. Now, a new study
from the University of Michigan Cardiovascular Center may help more people
save their limbs.
Because diabetes interferes with the body's ability to heal, even the
smallest foot wounds can become infected, spread to the bone, and lead
to an amputation. Poor circulation and numb feet, also common in people
with diabetes, make the situation worse. More than 80,000 such
amputations happen each year in the United States. Experts already
recommend that people with diabetes take special care of their feet and
have regular foot exams to spot problems early.
National data showed that 8.5 percent of patients
hospitalized for foot osteomyelitis had a leg or foot amputated, and 23
percent had a toe amputated. About 1.6 percent died before leaving the
hospital. Patients who were older, African American or had kidney
problems were more likely to have an amputation.
Of the U-M osteomyelitis patients, 80 percent had diabetes, and 30
percent had chronic kidney problems. Nearly 40 percent also had
blockage in the blood vessels of their legs, a condition called
peripheral vascular occlusive disease. Nearly a quarter of the patients
died within 31 months of their hospital stay.
The patients who had blood vessel reconstruction to improve
circulation in their legs and feet were several times more likely to
have successful wound healing and to keep their foot or leg. Toe
amputees were also more likely to keep their limb.
Antibiotics alone are not as effective as surgery plus antibiotics,
both for healing wounds and saving limbs.
The statistics seem grim, but trends are changing.
There was a report recently that said kidney problems in diabetics
were going down because of better control. You don't have to get
kidney disease. Like for other complications
from diabetes, the better control you have the better chance you have
at staying healthy.
Which Blood Glucose Meter Should You Use?
This is a topic I know very little about. I bought the One Touch
Ultra early on and have been happy with it, so I haven't had to
look into the topic. But I have picked up a few nuggets of knowledge.
You should be able to get your meter for free. Either your hospital, doctor,
or the manufacturer will probably give away a monitor. They give away
monitors because it is the test strips that are expensive. They
must make a fortune on tests strips. You need the test strips for the
rest of your life and they price accordingly.
Decide if you want to keep your free monitor. Use your free monitor
for a while and then decide if you want to keep it or use another one.
You'll have to do some research to see if there is another monitor that
you will like better. There are different kinds and one kind may appeal
to you more.
Some issues to consider when picking a meter:
- Strip Cost. Test strips are designed for a particular meter or meter family. As
part of your meter selection process take a look at what you
can buy test strips for. Strips vary widely in price and it could
make a big difference to you.
- Amount of Blood. Meters differ in the amount of blood they need
to get an accurate test. Some meters require smaller drops and
that means you need a smaller prick which should hurt less. This may be
an important consideration.
- Strip Loading Style. Some meters uses a motorized drum like device which
loads a bunch of strips at once. It can make testing a much simpler experience,
especially if you aren't coordinated or have a medical condition that makes
gripping difficult. Test strips are small and can be hard to handle.
- Bulk. Meters differ in their size. Having a small meter may be important
to you or it may not matter at all.
Where can you buy test strips?.
- Meter manufacturer. If they sell the strip they might be cheaper than
other sources. They may just direct you to another more expensive source.
- Ebay. This may not be your cheapest source, but it is a source.
- Your pharmacy or other retail store.
- Your doctor may give them to you for free.
How do you know if your monitor is accurate?. This is a question
that I had. How do I know the number on the meter is any good? There
are several methods of verifying your meter.
You will get tested regularly through your hospital. Take
a reading with your meter before you go get tested at the hospital.
Write down the reading from meter for later. When the results come
back from the hospital compare the numbers. They should be pretty close.
Blood testing is a relatively inexact procedure, so don't expect too
much.
Another way to tell if your meter is accurate is to use the Check Solution.
The instructions on how to run the test should be in your meter's manual. Run
the test about five times. A wide spread in the readings could mean your
meter is broken or that the test was run improperly. Try a new batch of strips.
Perhaps your strips are old or contaminated? Or perhaps the first drop out
of the Check Solution was not discarded.
Readings from your right and left side can be different. Do some testing
of your own to see how your numbers differ by side. My numbers are lower
on my left side so that's the side I test on :-)
If you run 10 tests on yourself in a row the numbers will be all different.
Your blood glucose is changing all the time so there's no real reason to
expect the readings to ever be exactly the same. Plus, there's just a
natural variation because of the mechanical reading process. If you get a
really high number that doesn't seem right then run another test to check.
Wash and dry your hands before taking the second test.
Many meters come with sofware that will run on your PC and you can download
your meter readings into the software. Then the software will culculate
highs, lows, averages, and produce all sorts of pretty graphs. If that sounds
good to you then be sure and check if your meter will have that feature.
For what it is worth, at the time of this writing (July 2005), Dr. Bernstein's
clinic recommends the Bayer Contour meter.
Advances in Monitors
Hopefully in the not to distant future we'll have continuous monitors so we don't
have to test through the day. I am looking forward to these monitors so
I can get a better picture of my numbers.
There's an interesting wristwatch monitor by Calistomedical at
http://www.calistomedical.com.
It doesn't require blood to be taken for a test, which is very interesting.
I don't ware a watch, but it might be an interesting alternative for those
of you who do. I have no reports yet on how well it works.
Some Useful Sites
- Glucose Meters & Diabetes Management
-
How Accurate Is Your Meter?
When Should You Fire Your Doctor?
Not all doctors or health care institutions provide the health care
you need or deserve. When that happens your best bet is to find
another doctor more aligned with the philosphy of treatment you
wish to follow.
Diabetes, in particular, is a disease with a wide range of treatment
options. This is partly because diabetes is defined by having blood
glucose of certain levels at certains times (fasting, etc). Over time
the blood glucose levels defining a diabetic have been going way down.
People diagnosed as diabetics today may not have been diagnosed as
diabetics 20 years ago, simply because the blood glucose entrance criteria
has gone lower.
There are many cases on the news groups of people with high and even
very high blood glucose levels who are being told by their doctor
that they aren't diabetic. If your morning reading is high and
your doctor isn't concerned, then get another doctor.
There are people with high A1Cs that are being told their control is
great and they are doing great and there's nothing to change. Get
another doctor.
There are people who are still given very high 1 hour post meal
and 2 hour post meal blood glucose targets. Get another doctor.
There are people who are told they don't need to test frequently.
Get another doctor.
If a doctor insists on treating with meds and refuses your requests
to try more diet and exercise as well, then it may be time to find
another doctor.
If your doctor only gives you 15 minutes of office time, that's normal.
How do you find another doctor?
You may think your are stuck with your current doctor because
your live out in the country or don't have a lot of money. You do have
options. This is the good advice (slightly adapted by me) given
by Ted Rosenberg on the alt.support.diabetes news group on finding
a another doctor. Ted says try:
For example, if your doctor prescribes you cough medicine, it's your responsibility
to ask if it's sugarfree. Your doctor may forget you are diabetic and prescribe
you normal people cough medicine.
Should You Take a Vacation From Diabetes? Dealing with Diabetes Burnout
Diabetes is relentless. Diabetes is 24 hours a day every day for the rest of your life.
This causes people to burnout from the constant monitoring, pressure, concern,
worry, and fear. How do you deal with burnout?
One suggestion is to take a periodic vacation from your diabetes. Don't worry about
what you eat. The idea is this will lessen the constant stress of dealing with
your disease.
In the US Independence Day is on July 4th. Some people declare that day independence
day from their diabetes as well. They will have the foods they would normally
deny themselves: apple pie, buns on their hot dogs, french fries, mash potatoes,
potatoe salad, corn on the cob, and all the other most excellent picnic foods.
Should you take a short vacation from diabetes? I can't answer that. As always,
it's up to you.
It's impossible to have perfect control in general. So you will always have
some times when you do well and other times when you do poorly. The key is not
letting a relapse turn into colapse. Don't let a little bad control push
you over the edge into saying it doesn't matter and then falling off the control
wagon for years. A couple of weeks of bad control probably won't hurt you
that badly. A year of bad control will probably do some damage.
One suggestion for when you purposely practice bad control is to still take
blood glucose readings. This helps give you an idea what's happening to you
and in time it will likely prompt you back into better control. Once you say screw it and
stop testing then you know you are in a bad place. What will start you testing
again? What will start you bad on the path of good control?
Like for exercise, an all or nothing attitude for control doesn't work. One
study showed those people who exercised 30 minutes at time wouldn't get as
much total exercise as those people who just tried to walk a certain number
of steps a day. The reason was that the people who blocked of exercise in
time chunks would skip exercise completely if they didn't have time. The
people who tried to walk a certain number of steps would still get some
exercise, even when they didn't reach their target.
Maybe contol is the same. When you try for perfect control you end up
with a worse overall results because when you lose control you go out
of control. Allowing a little bad control at times may give you
better control over the long run. Forgive yourself and be understanding for the
times when you don't live up to your expectations.
Why Test On the Side of the Finger and Not the Pad?
A question new people often ask is why when testing should you stick the
side of your finger and not the pad (fingertip) of your finger?
No technical reason that I know of. It doesn't matter. Use any part of your
finger from which you can get a good drop of blood.
People say they use the side of your finger because it hurts less. Fingertips in general
are pretty sensitive because they have many nerves which means they have more feeling
and are more likely to hurt when poked. As we use our fingers all the time
any injury on the fingertips may be more annoying.
There is some thought that a wound on the sides of your fingers are less likely
to get irritated by friction because they are more protected.
But you can pick the part of your finger that hurts less for you.
If you bruise easily, you may want to test on the pad of your thumb
as the bruises will be less visible. People with slender fingers
also may want to try testing on their fingertips. Bruising and irratation can be
minimized by holding direct pressure on the test site for at least thirty
seconds.
If you play a musical instrument you may want to restrict testing to
your off hand or select a suitable part of your hand. If you play the
guitar, for example, you may not want to test on the fingertips of your
fingerpicking hand.
Perhaps other jobs have similar considerations? People who type a lot
may not want to test on their fingerips either because their fingertips
will be constantly hitting the keys.
Many people end up using the same finger and the spot all the time
because they don't see any spots and don't create painful areas
over repeated tests.
The side of the finger close to the fingernail is an area many people
have found works for them.
Some people have complex rotation patterns so they can cycle through different
tests sites over time. This ensures when you cycle through your test sites
again your wounds should be completely healed. One example rotation pattern
is to use both hands, try the outside edge of each finger, then try the inside
edge of each finger. Every pass through pick a different test site so you don't
use the same test sites again for a long time. This kind of pattern gives you a lot of
testing options and should help you reduce your pain.
Why is My Blood Sugar Higher After Exercise?
You might see your BG rise after exercise. This seems counterintuitive at
first, because doesn't exercise use blood sugar? Shouldn't your BG be
lower?
What is happening is you are probably using enough glucose during exercise
to cause your blood sugar to drop. Your liver sees this and causes
more glucose to be dumped to help you sustain your exercise level.
This is a known effect so don't get worried.
Try eating 2 or 3 gram dose of pure glucose every 15 minutes while you
exercise. That might prevent the glucose dump. Glucose will go
straight to your blood stream and might work better than eating
food because food must be digested and may dump a lump of sugar
into your system all at once.
Or try eating a light carb snack, like a slice of bread or a portion of
fruit, before exercising. If you know you are going to exercise
hard you may want to eat more carbs before exercising.
Some people exercise after eating. Most people don't feel comfortable
exercising after eating though.
Muscle holds about 6 - 7 minutes of stored glucose to handle energy
demands. When you need to suddenly run away from a lion,
this is the energy that's used.
Then your muscles start using the blood glucose which doesn't require
insulin during exercise.
Then when your blood glucose is lowered to a point your liver
releases more glucose to replinish the blood. But because of your diabetes
your liver may overshoot and doesn't stop releasing sugar when
the previous level is reached.
You may find the less strenuous exercise, like walking, just lowers
your numbers. More extreme exercise may raise your numbers. If
you exercise really hard you may blow through the spike and your
numbers will lower again. Exercise hard for 90 minutes and your
numbers will probably be low. They may go really low, so be
careful.
The solution isn't to stop exercising. That would be too easy :-)
Exercise helps:
- Your blood sugar control all day every day.
- Reduce your risk of heart disease. A critically important point for diabetics who
are at increased risk of CHD.
- Improve your overall life quality.
You'll have to experiment to find what works best for you. Test all
throughout various exercise lengths and intensities using different
strategies for handling your BG.
Does a Low Glycemic Diet Help Prevent Spikes?
A low glycemic diet is one where you try to eat slower releasing carbs.
White bread will dump immediately into your system because it is made
up of simple carbs. Whole grain bread may have the same number of carbs,
but because it is made of complex carbs, it will release carbs slower.
I can't answer this question for you. You'll need to perform your
own testing to see a low glycemic approach works for you.
For me though it doesn't work. They raised my blood sugar, it just took
longer to see the raise, which at first lead me to believe my numbers
were better. They weren't better. Instead of seeing a spike at 1 hour
after eating I might see the spike at 1.5 hours instead.
So the spike was still there. And as the goal is to not have a spike
a LG diet wasn't effective for me. Controlling the number of carbs I
eat works, the type isn't as important.
Your mileage may vary though. You'll have to test to find out.
The glycemic index approach works better for people with normal second
phase insulin release because by the time the slower carb hits their
system their beta cells have produced enough insulin to have caused
the glucose to be taken up by their cells. For most T2s this doesn't work
because their second phase insulin response isn't enough. If you don't
know what this means don't worry about it, but you may want to do a little
research.
You can take a look at the GI table
here and here.
Remember, you'll need to test later after eating when eating slower
acting carbs. Your numbers may peak at 1.5 or 2 hours after eating
instead of .5 hours after eating.
NEW YORK (Reuters Health) - In more cases than would normally be expected, people who develop type 2 diabetes have a history of carpal tunnel syndrome. The wrist nerve problem sometimes predates the onset of diabetes by up to 10 years, according to a UK study.
Led by Dr. Martin C. Gulliford, a team at King's College in London examined medical records for 644,495 patients in England and Wales. They identified 2647 patients diagnosed with diabetes between November 2003 and October 2004, and selected a comparison group of 5,294 "control" subjects matched for age, gender, and location.
Medical records for up to 10 years before diabetes was diagnosed were reviewed for the first occurrences of carpal tunnel syndrome. Also, according to their report in the medical journal Diabetes Care, the researchers identified subjects diagnosed with Bell's facial palsy, a nerve disorder causing temporary paralysis of facial muscles.
Results showed that, after accounting for other risk factors, the pre-diabetes group was 36 percent more likely to have had carpal tunnel syndrome in the past than the control group.